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2024

ANUÁRIO DO HOSPITAL
DONA ESTEFÂNIA

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Primary Hyperoxaluria Type 1: The First Patient Treated with Lumasiran in Portugal

Madalena Almeida Borges1; João Martins2; Joana Monteiro Dias; Nuno Moreira Fonseca2; Telma Francisco1; Margarida Abranches1

1 - Pediatric Nephrology Unit, Hospital Dona Estefânia, Centro Hospitalar Universitário de Lisboa Central, Lisbon, Portugal
2 - Nephrology Unit, Hospital de Curry Cabral, Centro Hospitalar Universitário de Lisboa Central, Lisbon, Portugal 

- Port J Nephrol Hypert 2023; 37(2): 93-96.
- http://doi.org/10.32932/pjnh.2023.03.233

Primary hyperoxaluria type 1 is a rare genetic disease caused by mutations in AGXT, leading to an excessive hepatic production of oxalate, resulting in urolithiasis, nephrocalcinosis and chronic kidney disease. The authors present the case of a young female with PH1 who is the first patient treated with lumasiran in Portugal, and currently has a follow-up of 18 months.

Palavras Chave: Hyperoxaluria, Primary/drug therapy, Kidney Calculi, RNAi Therapeutics, Small Interfering/therapeutic use