1 - Área de Pediatria Médica, Hospital Dona Estefânia, Centro Hospitalar de Lisboa Central, Lisboa, Portugal;
2 - Programa de Vigilância Nacional de Paralisia Cerebral aos 5 Anos de Idade em Portugal (PVNPC5A);
3 - Centro de Reabilitação de Paralisia Cerebral Caloust Gulbenkian, Lisbon, Portugal;
4 - Hospital Prof. Doutor Fernando Fonseca, Amadora, Portugal;
5 - Universidade de Aveiro, Aveiro, Portugal;
6 - Federação das Associações Portuguesas de Paralisia Cerebral, Lisboa, Portugal.
- Poster
- 30th EACD CONFERENCE May 28-31, 2018, Tbilisi, Georgia
Resumo:
Introduction: Developed countries may attract patients requiring care for cerebral palsy (CP) that is unavailable in their native countries. This study explores the burden of CP in immigrant children in Portugal. Patients and methods: Data from patients born from 2001 to 2009, registered into the Portuguese National Surveillance of Cerebral Palsy Registry, at the goal age of 5 years old, are analysed. Definitions, classifications and instruments common for the Surveillance of Cerebral Palsy in Europe are used, in addition to the Portuguese classification of school inclusion. Results: Out of 1743 registered cases, 125 children non-born in Portugal were identified (7.05%; 95%CI 5.87–8.44); they clustered in Lisbon and the Southern Districts, were they account for 14% of registered cases. The main predominant clinical types do not differ from the cases born in Portugal, but they tend to have both a more severe distribution for GMFCS and BFMF (levels IV-V 61% vs. 50%) and higher prevalence of epilepsy (52% vs. 45%); they present significantly higher proportion of cases with severely affected speech (Viking levels III-IV 64% vs. 46%) and impaired cognition (74% vs. 60%). The proportions of children without MRI or non-included in the regular school system are twice higher if born abroad. They tend to have been more frequently affected by perinatal hypoxia and post-neonatal events. Conclusion: In Portugal, children with CP born aboard account for a large proportion of cases. They tend to be more severely affected, to have lower access to care and to have less scholar inclusion.
Palavras Chave: cerebral palsy, disability, inclusion, inmigration, surveillance.